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Caregiving for Caregivers

Who is there for us? When we are up 2,3, or more times with a family member during the night and all day too. We have to learn how to take care of ourselves in order to take care of others. We need to support eachother everyday, everynight.

Website: http://www.connect.legacy.com/group/caregivingforcaregivers
Location: Niles, Illinois
Members: 35
Latest Activity: May 27

Discussion Forum

What do I do now??

Started by Angelina Rael Smith. Last reply by Diamond Oct 8, 2012. 1 Reply

Hurt feelings--Am I too sensitive?

Started by Connie. Last reply by Connie Feb 29, 2012. 6 Replies

Is this the right group for me? Yes!!

Started by Connie. Last reply by Connie Dec 20, 2010. 9 Replies

Comment Wall

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Comment by Carlo Cacioppo on December 9, 2012 at 9:41am

Lets all try to get through this holiday season by supporting eachother. I am here for you 24/7 if you need me.

Comment by Carlo Cacioppo on July 25, 2012 at 9:21pm

Gloria, debby and I got your email today and it looks like nothings changed for the better as far as your respite time away and the burden of your son's suicide still very fresh in your mind and your heart. Debby and I went through this not going anywhere and potential caregiver burnout and very little help thing for 8 years in a row from 2002 to 2010. What town do you live in or near where the local senior center could help out. Try calling your village hall senior services and they should have referral phone numbers you could call to get some help or at least info on where to call. Keep in touch.

Comment by Carlo Cacioppo on April 14, 2012 at 8:46am

Morning kathleen, so sorry to hear about your mom, it was a devastating time to relive all those memories but your mom as you know is no longer sick and with you dad again. Kudos to you for bringing her home where she wanted the end to take place, can we say its now, KATHLEEN'S TIME TO RELAX. Please take some time for yourself with walks and a little fun if you can and recharge yourself, be with friends. Keep yourself going in a positive direction, glad you are doing ok considering.

Comment by kathleen caylor on April 14, 2012 at 7:19am

Hi all,I haven't been on Legacy for a while.I lost my mom on 12/31/11.She initially got sick with CHF in Nov.and was hospitalized for 1 week and dicharged to a re-hab facility.After 3 weeks there I fought to get her home.Her main request was to die at home.She had been raised in an orphanage and didn't want to die in a nursing home.The least I could do was honor that wish.She remained active til 12/30,then took a sudden turn.So she went very quickly and peacefully.She died 2 weeks shy of her 94th b-day.Now she's with my dad.I may have complained before,but I sure do miss that ornery,old lady.I didn't realize what a blessing it was to have her in my home after the death of my husband.Now I'm feeling like I'm reliving his death all over.plus hers.Grief sucks.But it is the price we pay for love.Good luck everyone.Appreciate what you have.It won't last forever.

Comment by Carlo Cacioppo on April 13, 2012 at 6:14pm

Gloria,

Sounds like you have your hands full. My name is Debby and I am Carlo's wife. We have been caregiving forever it seems like, first my Mother then Carlo's Mother. The thing you have to remember is if you fall apart you will not do any good for anyone. It is easy to fall into the trap of thinking you are not important enough to take care of. I know you are probably exausted from constant caregiving, but you would be surprised how good a short walk can make you feel. Go to the park or the local zoo for your four hours, just lose yourself for awhile, you don't have to do anything, just being outside in the nice weather should help. Take some you time and go for a massage. Do whatever you used to enjoy. Write back if you need to talk, we check this site everyday, and we are hear for you to lean on. My sympathy for the loss of your son. God Bless you

Comment by Gloria Callighan on April 13, 2012 at 5:34pm

My mom is 86, bedridden, no right side of body movement, can't speak, but understands, getting heavy from lack of exercise and I am getting weaker. I cannot and will not put her in a nursing home.  I am a believer but I don't even turn that way anymore. Body aches all over. No other person in my life, except remaining 38 yr old son, who won't share with me about his feelings. Supposedly everyone standing on their own and I have so much to say, but have to keep it inside, until I found this site, which I know is somehow going to help me. I have 4 hours out tomorrow supposed to be in 80's and everyone is telling me go do something good for you.  I don't know what. My interests are I don't know.  My energy is pitiful. Yet I am tired of this apt and DO want to get out.  I hope I can, I hope I can. God Bless to All.

Comment by Gloria Callighan on April 13, 2012 at 5:30pm

Hi I'm a caregiver of my mom close to 3 years now. Her and I in the apt together, I get out 6-7 hours per week to do errands. I don't treat myself to anything good or exciting. And now with this horrible news of my son's suicide, I had to up my antidepressants. It stopped the crying and worrying but now I feel so robotic.  I am aware but I am a walking robot. Have no interest today except to sleep.

Comment by Carlo Cacioppo on March 17, 2012 at 10:04am

how  everyone doing? hopefully the early springlike weather in the midwest has helped you all get out more and  feel less penned in with emotions running high, get out and enjoy the weather, breathe and take care, you will get through this.

Comment by Carlo Cacioppo on March 8, 2012 at 9:21am

yes betty jean we are all here.

 

Comment by Carlo Cacioppo on March 8, 2012 at 9:20am

yes as far as I know we are all still here.

 

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